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About Elly Gedye
Fierce special needs advocate by day, her books support Nonketotic Hyperglycinemia (NKH) Research - a rare and terminal metabolic disorder. All royalties go towards supporting Prof. Nick Greene at UCL. #nkhcansuckit
All her books come in bilingual form supporting multilingual families, and where possible she bends gender stereotypes (who says girls can't be astronauts/engineers/scientists AND ballerinas/singers/teachers?!)
Elly lives in London with her partner and son. More at www.BooksForWednesdays.com
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Eva is a bright, determined girl with a bountiful imagination. She fills each day with adventures, squeezing in as much as she can before bedtime. A trip to moon, cure a rare disease, drive a train? Absolutely.
What will today bring?
---What gender stereotypes?
Our princess is more likely to save herself than to wait for her prince. She’ll be train driving, rocketship flying, and opera singing. We hope girls and boys will not be held back by gender stereotypes, and we strive to portray positive gender examples.
---Supporting Children's Charities + NKH Research
Our books support children with NonKetotic Hyperglycinemia, a rare and terminal metabolic disorder.
It's hard to explain what NKH is like, as a parent. To watch your baby have countless seizures, miss every milestone and live an incredibly medicalised life. The pain and suffering are heartbreaking. The fear and grief can be overwhelming.
So we have our hope in a cure. Specifically a gene therapy cure. Even more specifically, a cure currently in development by Prof. Nick Greene of UCL in London, UK. We believe he is the closest to a clinical trial. The closest to giving us a future with our son.
Because NKH is so rare (less than 40 children in the UK, less than 500 worldwide) there is little to no awareness. There is little to no funding for research. So we, as parents fund what can. Through local fundraisers, and events and raffles. And children's books.
All our books support Team Mikaere and Joseph's Goal - a charity for children with Nonketotic Hyperglycinemia.
Thank you for helping fund a cure for our children.
---Available in bilingual form!
Sometimes, one parent can speak a language the other doesn't, and bedtime stories shouldn't suffer because of it. Sharing the love of languages and learning is a priority for us – all our books will be available in bilingual forms.
Currently available in English and French, Dutch, Spanish, German and Serbian. More languages coming soon!